Sunday, February 1, 2009

Last day without a trach

This was Noah's last day without a trach. When we got to the NICU this morning, Kc and I went right to work. He cleaned out Noah's colostomy bag while I changed his diaper. I was officially indoctrinated into the "mothers of little boys" club when Noah decided to pee all over me during the diaper change. I feel so special!
Noah was able to start taking breastmilk today - his first "real" food. He has a tube down his throat that leads directly into his stomach. Up until today, they have used that tube to empty his stomach of bile. Today, they were able to give him a syringe of breastmilk and he quite enjoyed it. Unfortunately, he has to have an empty stomach for surgery, so the feedings stopped at midnight. If all goes well tomorrow, however, he will be able to begin eating by dinner time.

Because of Noah's ET tube, we have not been able to move him from his bed. Once the trach is in and he is stable, we will get to hold him again. It seems like forever since I have held my son and I am so looking forward to feeling him in my arms again.
The orthopedic doctor came today and evaluated Noah's club feet. He is confident that with casting and possible surgery, Noah will be ready to walk by his first birthday. How wonderful! The doctor will begin the casting in a few weeks - once most of Noah's surgeries are behind him.

Kc and I began our trach training today with Nurse Liz. She pulled out her "trach baby" and taught us how to replace a trach (a once weekly process) as well as suction out a trach (happens every couple of hours). It is an overwhelming process, but I know with time and practice we will begin to feel more confident.

Noah's tracheotomy is scheduled for 9:30 tomorrow morning. So many of you have been praying for Noah and we appreciate it more than you can ever possibly know. At times I feel as though it is only through the prayers of others that I am able to get through this trying time. Please pray for Dr. Dunham and his team tomorrow that they have wisdom and strength during Noah's surgery. Thank you!!!!!

8 comments:

  1. "Noah decided to pee all over me." So that's what I have to look forward to when our son is born? I can't wait!

    We will certainly keep praying for all three of you. Thanks again for keeping us updated and letting us know how Noah is doing.

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  2. Praying! You are in good hands there...

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  3. I wonder if you have any idea how many people from all over the country are on "Team Noah" and are praying for you and your parents? You are a wonderful little boy and loved by so many!
    Mary Anne Hanson

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  4. Feel better soon, Baby Noah!
    love,
    Ellie Buck

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  5. We're praying that God's strength continues to be evident in Noah's body, and your and KCs ability to cope, adapt, and enjoy during this time. What a little miracle noah is. Boots and I appreciate you guys living this part of your life out loud. You really are paving the way in such a godly manner for those of us who are a few steps behind. Thank you.

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  6. Go Team Noah!!!!

    Katy Mc

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  7. All of Copper Hills is praying for the Jackson family...

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  8. You guys will be experts in trach care! Once you get it, it's easy. You can teach me a thing or two, I'm sure....! Who is his ortho dr.? Praying for you guys! Since I work in the OR, let me know anytime he has surgery and I will try to be there! It's always nice to know someone. - Amy Noble

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