Wednesday, February 4, 2009

One Week and Counting

It is hard to believe that one week ago, Noah was born. This week has perhaps been the longest week of our lives. The ups and downs are becoming less jarring as we take two steps forward and one step back.

Last night, after his midnight feeding, Noah had some acid reflux and aspirated a bit of his milk into his lungs. After a chest x-ray, the doctor was concerned that his lungs did not look as developed as they had first thought. He has been put on oxygen (the green tube covering his "nose") with the possibility that it will be pressurized later on.
After pulling out his OG tube (the tube that leads down his throat to his stomach) for the fifth time, the nurses decided he just didn't like it gagging him constantly (how intuitive of them). They changed it to a NG tube (going from his nose down his throat). He seems to tolerate that much better. To help with his acid reflux, Noah is feeding much slower (only 3 ml every hour) and is given some meds. Unfortunately, this means he will not be bottle feeding any time soon. Kc and I were hoping that we could start feeding him in the next few days, but that dream will have to wait.

Both Kc and I suctioned Noah again today. This suctioning involves taking serile gloves, putting them on in such an exact way that they remain sterile, connecting a long, sterile tube to a pump and then putting it down his trach. You must slowly, but not too slowly, twirl the tube as you pull it out of his trach, hopefully taking lots of goo along with it. Because Noah cannot breathe with the tube down his trach, he does not like being suctioned. It typically takes one of us to hold him still while the other suctions. He is suctioned about every four hours, depending on how "junky" he sounds. We are learning to listen to him breathe and determine when suctioning is needed.
Tomorrow, we should have some results from the voiding cystogram (pee test) and spinal ultrasound that were done today. Once again, we cannot thank you all enough for your love, prayers and support. We feel as though we have been out of touch for so long. Our days are spent morning to night in the NICU. This blog allows us to keep everyone in the loop without multiple phone calls. What started out as a way to share thoughts and pictures with out of town family members has grown into a phenomenon known as "Team Noah". Our little man has touched our lives and reinforced our faith. We are humbled to know that his story has touched so many of you. THANK YOU!!!!!

8 comments:

  1. What a week it has been! Noah has been touching my heart ever since I knew he existed, but even more so in the last week. I have been and will continue to lift your family up in prayer! May God continue to strengthen and heal little Noah; you and KC be given endurance, comfort, and love; and that the Drs. continue to have wisdom and compassion. I am looking forward to meeting Noah and getting to know him soon! In the meantime, I'll be praying to our Heavenly Father and reading your story.

    Love,
    Jenn T.

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  2. he's such a beautiful boy! did I miss the update about his right eye? Is there one behind the skin? Pls feel free to delete this msg if it's too awkward. :0) I think the scar is pretty cute - looks like he's winking ;)

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  3. Hi Noah, I prayed for you at school yesterday, and afterward my teacher Mrs. Smith and aide Mrs. Tatum both said they knew your parents from The Well! My class is going to add you to our regular prayer list. Love, Olivia Quebe
    (P.S. Gotta love a christian education environment! ~:) Jane, Olivia's mom)

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  4. Wow, amazing what a week can bring. Your strength and faith have touched so many lives. Reading your blog humbles me in my faith. You are held up in prayer by so many people that love and support you. You are loved and truly blessed with amazing friends. Love, Shari

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  5. Thanks for sharing your story. We're praying for your regularly!

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  6. You have come a long way in a week! God's grace continue to cover you!

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  7. Keep growing Noah. You have more friends than you can imagine all waiting to meet you.

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  8. We are praying for you Noah. You have amazing parents.

    Love,
    The Lugo Family
    (Victor, Megan, Elijah, & Lillee)

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