Blink of an Eye: Not again...

Monday, February 2, 2009

Not again...

This morning I woke and found Mommy and Daddy speaking with several nurses and a Doctor who looked very familiar. I tried to hear the details of the conversation, but I just wasn't close enough. However, I did see the Doctor pointing down his throat at the same time turning to look my way. As soon as he left, the bus arrived and it was driven by that anesthesiologist. Not again!

Once I boarded the bus and we started to drive, Mommy and Daddy followed along behind. On the way, I asked Daddy how the Cardinals did in the Super Bowl game. He told me, "Let's not talk about it." The next thing I remember I was waking up and there was nothing in my mouth. No more tubes! So it seems that I was right all along. When I grow up I should become a Doctor. I'm way ahead of the game.

There is this strange thing, four times the size of my ET tube, sticking out of my neck. I'm not sure how I feel about it yet, but I'll have to think about it tomorrow. Nurse Nancy just came in with some "happy juice" for me.

7 comments:

AnonymousFebruary 3, 2009 at 7:51 AM
What a wonderful way to feel sooo connected to you all....we are keeping you in our hearts, our thoughts, and our prayers......and, by the way, Noah, I rooted for the Cardinals, too, but it is only a REAL Super Bowl when the PACK plays!!! You are such a special little baby and we're sending all our love from Iowa to California!! Dave and Mary-Sue
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AnonymousFebruary 3, 2009 at 8:06 AM
What a guy! And I confess that I hate watching sports, but reallly wanted the Cardinals this year - and when yhou get older, you can watch all the cool commercials. Keep those nurses on their toes!
Mary Anne (Leawood, Kansas)
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AnonymousFebruary 3, 2009 at 8:24 AM
Hey Noah, Its Nana here. I saw you yesterday but you were getting "happy juice" so you probably don't remember Papa and me visiting. We love you very much and cannot wait to hold you. Sierra your dog is staying with us while Mom and Dad visit you. She cannot wait for you to come home. Sierra wants me to tell you that she played with your cousin Hunter this week-end and she loved licking Hunters hands especially after Hunter had eaten his barbecue pork sandwich. Nana has lots of cool boys toys for you and Hunter and that new cousin (coming in July) to play with. We will see you soon.
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AnonymousFebruary 3, 2009 at 9:39 AM
What a gift you have been given in your amazing parents and family! You are being lifted up by sooo many people.. You are loved and we cannot wait to meet you in person.. Love from the Bells
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AnonymousFebruary 3, 2009 at 3:46 PM
Lookin’ good little man. Your mom said she was so happy to finally hold her son....That’s you...keep charging forward on your surgeries take them one at a time and you will be done before you know it.... and don't forget to floss when you get some teeth.
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SharilynFebruary 3, 2009 at 5:38 PM
Well, I have everyone I know praying for all of you, and I am so glad to hear that things are going well. I am sorry that you missed the Superbowl, it was actually better than the commercials this year. I had a bit of happy juice myself that day;)
Hang in there, all of you! I can't wait to meet you, Noah.
Love, Shari
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AnonymousFebruary 3, 2009 at 7:46 PM
We have enjoyed sharing in your blessing by following along with the updates of your gift of little Noah. A child is truly one of the most pure, sweet gifts of love. We are so happy for you to have him in your life (as well as happy for Noah to have such wonderful parents!) We look forward to hearing of all the adventures Noah will lead you in! Luke, Cass, and Emerson
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.