Highs and Lows

This weekend was VERY busy and there were a series of highs and lows. Kc and I continued to stay in Room 1631 and the nights have gotten a bit better. We're able get a few hours of sleep in between feedings and diaper changes. Speaking of feedings, Noah was eating so well on Thursday that Dr. Fields took out his NG feeding tube. We were able to get a few pictures of him without anything covering his face (the first time since right after he was born).
As soon as the tube was out, however, Noah went on a bit of a hunger strike. He refused to drink anything from his bottle. We tried everything to get him interested — multiple different nipples attached to the bottle (thanks Nana for getting them), waiting longer between feedings, I even switched from breast milk to formula to see if he would like that better. Nothing worked. Unfortunately after 24 hours of very minimal eating, we put the NG tube back in. He is now eating around 30 ml from the bottle and the rest is pumped through the tube.

On a high note, we had several visitors who brought us yummy treats to eat. Noah got to be held by Chris and Lindsay (the future Mr. and Mrs. Overstreet) and Katie (the future Mrs. Torstensen). Our friends Dave and Mary are coming by tonight and Nana and Papa have been here lots.

Kc and I went to church on Sunday. It was our first time since Noah was born. Our church family has been so supportive over the past few weeks. They prayed for us and gave us the encouragement to keep going!

There is a strong possibility that we will be going home tomorrow morning. Yeah!!!!!! It will be a short stay, however, for we will be heading down to Children's Hospital Los Angeles to see a cornea surgeon and hopefully get some more information about the new drug. We'll know more tonight.