No Tests Today

It was another glorious day in the NICU. Noah did not have any tests today. Dr. Mead came in and spent about an hour talking to Kc and I about Noah's progress. His spinal ultrasound came back normal. The results from his voiding cystogram (pee test) came back fairly positive. They are keeping an eye on his acid reflux, but are hopeful that by reducing the amount of milk he takes in a single feeding will help. Dr. Curry, the geneticist, will be by on Monday to evaluate Noah and discuss the results of the detailed chromosomal test. She will also determine if there is a possibility he has a right eye. If so, a CT of the head will be ordered.

Noah had his first visit from his Occupational Therapist, Sandy. She began working with him on bottle feeding. Because Noah has had so many tubes in his mouth that go down his throat and gag him, he was a bit reluctant to have another woman shove something big in his pie hole. Once he figured out how hungry he was and that the bottle gave him yummy goodness, he was able to drink about half of his milk. He is learning the trifecta of sucking, breathing, and swallowing in it's propper order. When you try to do them all at once, bad things happen. Just ask Noah.

Kc and I did more training with Dave today. We practiced replacing a trach tube (something that will happen at least once a week) and changing trach ties (the straps that wrap around his neck) on a ratty, plastic doll who lives in a tackle box. Once Dr. Dunham replaces Noah's trach for the first time on Monday, we will begin to practice on the real thing. How scary!!!

There are no pictures today because we spent the majority of the day holding and cuddling - something we are getting VERY good at. We promise to post several tomorrow.