Friday, February 6, 2009

No Tests Today

It was another glorious day in the NICU. Noah did not have any tests today. Dr. Mead came in and spent about an hour talking to Kc and I about Noah's progress. His spinal ultrasound came back normal. The results from his voiding cystogram (pee test) came back fairly positive. They are keeping an eye on his acid reflux, but are hopeful that by reducing the amount of milk he takes in a single feeding will help. Dr. Curry, the geneticist, will be by on Monday to evaluate Noah and discuss the results of the detailed chromosomal test. She will also determine if there is a possibility he has a right eye. If so, a CT of the head will be ordered.

Noah had his first visit from his Occupational Therapist, Sandy. She began working with him on bottle feeding. Because Noah has had so many tubes in his mouth that go down his throat and gag him, he was a bit reluctant to have another woman shove something big in his pie hole. Once he figured out how hungry he was and that the bottle gave him yummy goodness, he was able to drink about half of his milk. He is learning the trifecta of sucking, breathing, and swallowing in it's propper order. When you try to do them all at once, bad things happen. Just ask Noah.

Kc and I did more training with Dave today. We practiced replacing a trach tube (something that will happen at least once a week) and changing trach ties (the straps that wrap around his neck) on a ratty, plastic doll who lives in a tackle box. Once Dr. Dunham replaces Noah's trach for the first time on Monday, we will begin to practice on the real thing. How scary!!!

There are no pictures today because we spent the majority of the day holding and cuddling - something we are getting VERY good at. We promise to post several tomorrow.

5 comments:

  1. It's so great to be able to delight in the small things and yet realize how big the small things can be. Learning to eat using a bottle is HUGE! Keep up the good work, Noah!
    Love, The Tanner Family

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  2. I have enjoyed reading your blog tonight! You truly are amazing! Thank you for sharing your life with all of us on blogspot! We are praying for you both and your beautiful son Noah! May God Bless you all!
    Love, Stephanie Tucker
    (Kim Schaaf's sister)

    ReplyDelete
  3. God bless the 2 of you and Noah; what truly marvelous parents you are. We too would like to thank you for keeping us posted on Noah's progress in such detail with pictures too. Please know you 3 are in our prayers! Love, George and Sue Hood in AZ

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  4. Greetings from Wisconsin! We can't imagine the emotions you all must be feeling. You have a darling little boy and we're praying for so many things--patience, courage to face the coming days, healing (of course), a "lifting up" when you are down, and even more patience. It's really nice to be able to know thru the blog how things are progressing and to actually see Noah and Mama & Papa.
    Gerald & Jeannine Bown (Grandma Smith's cousin)

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  5. You deserve a break from the paparazzi, Noah, even though I miss seeing you. You are such a trooper, as are your mom, dad, and all those other relatives and friends on the scene. Here's to tomorrow - wishing you a day of sunshine.
    Hugs from Kansas - Mary Anne

    ReplyDelete

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