Today started out bright and early. Noah had an MRI scheduled at 8:15 so Nana and I headed to Valley Children's to be with the little man. He needed to be sedated to ensure that he would be perfectly still for the MRI, so while Noah was being taken care of by that anesthesiologist, we had a chance to chat with a friend, Kirsten, who is an ER nurse at Valley Children's. After recovering from a "light sleep", Noah had a visit from his OT, Sandy, and practiced feeding from a bottle again. He is getting much better and only gagged himself twice. He drank 23 ml from the bottle and finished the last 17 ml through his NG tube.
After much cuddling and sleeping, Noah had a visit from Dr. Kelly, the ophthalmologist. Her second examination of his left eye was encouraging. Noah's retina looks good but his cornea is swollen and becoming cloudy. She has increased the eye drops that he is given in hopes of preventing any more damage to the cornea.
We said a sad farewell to our friend Mia today. She has left Valley Children's Hospital and transferred to a hospice home for young children. We have all been touched my Mia and her parents, Sarah and Bryce. They are walking down a crooked path full of uncertainty but are trusting in the Lord to comfort them along the way. We thank them for shepherding us through the trials of tracheotomies and will pray for them in this new chapter of their lives.
Kc returned to work on Monday and has been missing his little man. At one minute passed five, he jumps in his car and speeds towards the hospital to join us. He arrives just in time to change a diaper, empty the ostomy bag, and hold his son while he takes his six o'clock feeding. Unfortunately we have to leave the NICU at 6:30 p.m. because they have a shift change, but Kc is able to spend some quality time with Noah every night.
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Man! He is so precious!!! Mia is in good hands with Allen/Spees. They are amazing people with a calling! Thinking of you guys always! If you need anything, I'm in the OR. Call me anytime... 353-5377 (392-0164 cell)
ReplyDeleteAmy
Noah is two weeks old today! Noah, that's ALL ten fingers and four toes. Yikes! You're going to be out of fingers and toes by next week!! We are watching your journey and praying for you daily. We will pray for Mia as well. We love you guys! Love, Debbie, Fred, Avery and Evan
ReplyDeleteThe photograph's of this little baby are amazing! Thank you for sharing your very personal journey with all of us. You bless us daily with your unconditional, deep, soaking love. Our hearts are with you...
ReplyDeleteJim and Debbie Fletcher
Hi KC, Rebecca and Noah, Still praying for you. We will pray for Mia, Sarah and Bryce too.
ReplyDeleteMia is actually not coming to see us at Allen/Spees. :( We are more of a transitional home to get babies healthy enough to go home. Unfortunately she is going to Hinds Hospice where she will eventually go to be with the Lord. I am actually going to visit her today and will send her all your love! It is such a blessing that you have been apart of each others lives.
ReplyDeleteLindsay
Wanted to say hello and tell you that Noah is such a beautiful baby. (Of course you already knew that!) :) He's got such a great personality too! *I loved his blog entry about his "crib."
ReplyDeleteYou both are AMAZING parents and I know that Noah is one of the MOST loved babies in the entire world! I am praying for you.
Love, Kathy Caram
Happy 2 weeks Noah!!! Love the Mc's
ReplyDeleteThank you for keeping us up on Noah's progress! We check every day.
ReplyDeleteLove,
The Horns
He is so sweet! How precious he is! You guys are such troopers---all of you! It must be so hard for Kc to be back at work! I'm glad that Kc can spend time with Noah each day! I'm continuing to pray for you, Noah, that your drs. continue to care for you with wisdom and kindness. I hope to meet you soon little man! Bec & Kc, I love you both and am praying for strength and endurance, love and encouragement. Thank you for sharing your journey with all of us.
ReplyDeleteLove,
Jenn