Thursday, February 5, 2009

A Beautiful Day

Today was a great day in the NICU! Noah did not have ANY tests done and although we did not receive any results from previous tests (we kept missing the doctors) we had several visitors and got to hold Noah most of the day. He currently weighs 8 pounds 14 ounces which is 10 ounces more than when he was born. He graduated from his warming bed into a big boy crib and is now able to wear clothes. We put Noah in a cute gown that his Auntie Nessa and Uncle Drew gave him for Christmas. Our little man is growing up!
Soon after Kc and I got in this morning, our Case Manager came in to talk to us about what life will be like with Noah at home. We will have suction equipment for his trach that must be with him at all times as well as a monitor that keeps track of his heart rate and breathing rate. I will have a large duffel bag to store his "travel" equiptment along with a diaper bag to take with me whenever we leave the house. Short trips to the market will be a thing of the past.
Noah's colostomy doctor, Dr. Hodge, came by early in the morning and told the nurses that "Noah needs to eat". Once they got approval from his primary care physicain, we were able to feed Noah 15 ml of milk through his NG tube every three hours. If he can get his breathing rate under control, Noah will be able to feed from a bottle. We're hopeful that will happen in the next few days.
After lunch, Noah had his first visitor. Joanie, a very close family friend, came to say "Hi". She brought in some books to read, but unfortunately Noah slept through her whole visit (I think it was his first food coma) and didn't get to hear any stories. After Kc and I had lunch in the hospital cafeteria (thanks to a generous gift card from our Church Staff), we returned to the NICU and Kc read a few books to Noah. That put him right back to sleep. Nana and Papa came to visit in the early afternoon. We took turns cuddling and rocking Noah, something he LOVES!!!!
Kc and I changed several diapers, emptied out the ostomy bag a few times, suctioned twice and watched the nurses replace his "split 2 x 2" (the gauze that is between his trach and neck). All in all, it was the best day we have had in the past week.

16 comments:

  1. Praise God! It is wonderful to see Noah in your arms! Your pictures are priceless. Continuing to pray for your little man and for you!!!!
    Love, Melissa Cline

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  2. Hope you liked our book sweet little man, its very important to know your ABC's and it makes it a little bit more fun to hear them by Dr Seuss. So glad you had such a great day! Love you! Ben and Sara

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  3. Awww he just looks so very precious!!!! Thank you for continually keeping this updated. Starting at about 9pm every night mom and I go back and forth hitting refresh until someone yells there's a new post! It is the highlight of our day! As well as letting us know what to be praying for!
    Lots of Love,
    Kamray

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  4. What a great blog this continues to be! I love how you write Rebecca and that photo of Noah looking up at you is priceless. Kc, what a sight to see my son reading to his son... all the photos are so professional, so touching. Even though it's sad all that is happening right now, I see love and even joy in your faces. I love you two and little Noah. Words can't describe this love we have but God said it best when He said...
    "We love because HE first loved us." 1 John 4:18
    Love, Grandma Jackson

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  5. Hi buddy
    Its Sierra here. You probably don't know me yet, but I am your dog. We will stick together as you grow up. I know about your poking and prodding. Nana took me to the dog doctor and I had to have my temperature taken in my back end and the I had to have some shots. Now Nana has to squirt stuff in my ears and squish it around. What is it with Mothers and Grandmothers and clean ears????? I hope you come home soon so we can meet each other. Nana shows me your blog and I already know we will be friends.
    Sierra

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  6. This blog is the highlight of our day! How wonderful it is to be able to follow all of Noah's incredible progress! But the picture of him looking at his mother is the most glorious thing we have ever seen. We (and so many others) continue to pray for all of you, the doctors, nurses, and everyone who touches that sweet boy.
    Much love, Brad and Trish Wilcox

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  7. i just figured that i can see your blog on my phone. it is slow, but worth it so i can keep up with Noah's progress while i'm it tampa. he looks so cute in his onesey. i love the picture where he's looking at rebecca. i love you guys.

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  8. You guys take such awesome photos! I don't know if you know it but there's a site where you can turn your blog into a book - http://www.blurb.com/create/book/blogbook. It's my inspiration for being a diligent blogger. What a treasure your blog will be for Noah when he grows up!

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  9. I am so glad Noah had his first p.j. day (that's what we call days where we have no where to be and nothing to do)! Hope you have many more! Keep up the good work. Love the Lassahns

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  10. I am so glad to hear today was a beautiful day, despite the nasty gloomy day outside yours was beautiful and bright! Love to hear this news!

    Jess Hotl

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  11. And i spelled my own last name wrong!

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  12. I love the pic of Rebecca and Noah looking right at each other. Priceless!

    Lisa C.

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  13. Beautiful!!!!!!!
    Noah is looking great!!!! What a tough guy!!!!
    Are prayers are being answered!!
    the denistons.

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  14. You guys are so precious, all three of you! Noah, you are a handome, tough little man (I think you get that from your daddy). Rebecca, you look beautiful in every picture, I' thoroughly impressed you find time to do your make-up and hair. And Kc, you look like a natural, before long I'm sure we will see pictures of you two kicking around a soccer ball. We wish you blessings and many more days like today!

    The Grunaus

    PS. Teacher Jeff says keep up with the Dr. Suess books!

    PS. Teacher Jeff says keep up the Dr. Suess books.

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  15. We just can't tell you how it makes our hearts sing to see the Jackson family and to be able to watch Noah's progess. All of you are in our hearts and prayers daily and this blog is definately the highlight of our day too! Your faith is not only such an inspiration and blessing to us all, but it also serves as a catalyst in the growth of our faith as well. Go Team Noah!!

    Love, The Tanner Family

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