Not much sleep

Well...last night was an adventure! Let's start at the beginning.
At around 9:00 p.m. I decided to lay down in preparation for waking up every three hours to do diaper changes and get ready for feedings. There is a large vinyl chair that folds down to a "bed". It is definitely larger than a twin but I don't think it's quite a full. Kc was not tired at all, so he stayed up and read for a bit. About every 15 minutes there was some disturbance — alarms going off, nurses coming in to check said alarms, kiddos next door crying, nurses coming in to "take vitals", other nurses coming in to take blood samples, and pump machines making beeping noises. Noah was amazing and seemed to sleep through the whole thing. We, however, did not.
At midnight, after NO sleep, Noah's pediatrician came in to do rounds. He asked about how Noah's feeds have been. I told him that two days ago, because of the concern with how much Noah was spitting up, one of the hospitalist increased the time that his feeds are pumped through the NG tube. Instead of the typical thirty minutes, they increased his feeding time to ninety minutes. Because he is fed every three hours, he would feed for an hour and a half and then digest for only an hour and a half before feeding again. The feedings were so long that Noah was not feeling hungry and therefor stopped bottle feeding. I was unable to get him to take more than 10 ml the past two days and his OT, Sandy, couldn't do any better. Noah's pediatrician, Dr. Fields, immediately called a nurse in to the room and had her stop his pump feeding through the NG tube. He said that in order for Noah to go home, he needs to learn to eat, and in order for him to eat, he needs to be hungry. Dr. Fields then told me to bottle feed him every three hours. I am proud to announce that my little man has taken three bottles of 75 ml each over the past three feedings. He has not had any milk put on a pump to go down his NG tube. What do you know, a hungry boy will eat.
Kc left for work at 6:00 a.m. after a combined total of about one hour of sleep. He went in early because he needed to come back to Children's Hospital today at 10:00 a.m. for Noah's second trach change. Nana, Papa and Kc all got to practice putting in a new trach. Right before that, Noah had his first cast change. The nurse practitioner who changed his casts told me that "his legs are looking great".

Nana stopped by our condo to pick up the mail and feed Kitty. Waiting at the front door was a package addressed to Noah from Aunt Mary Lynn, Nicole, Marvin, Megan and Dakota, containing some Green Bay garb for next year's Super Bowl. Doesn't he look like a future Packer fan?
Hopefully tonight will be a bit more calm and we can get some much needed sleep between feedings. Either that, or we'll be so exhausted that we'll sleep through all the beepings and interruptions.

Thank you for the prayers! I am very hopeful and optimistic that we'll be going home soon.