Tuesday, February 17, 2009

Next Week!!!

Yesterday was a bit of a discouraging day and we didn't get home till very late. I actually had to give myself permission NOT to blog. I am sorry to all of you who logged on this morning and did not have anything to read.

These past two days, Noah has had several visitors. My good friend Debbie came Monday morning and today another friend, Lisa, came in the morning and Joanie came in the afternoon. My little man is being spoiled by so many people. He is loves cuddling and sleeping in the arms of lovely ladies.

Dr. Lin, a cornea specialist, came and saw Noah yesterday. He said that Noah's left eye is a "very difficult case". Unfortunately if the capillaries continue to encroach on his cornea, he will loose his sight. There is a brand new clinical trial that Noah may qualify for. It is for a drug that is currently given to diabetes patients but has not been tested on infants. We'll get more information on it later this week.

Noah had several ups and downs with his eating these past two days. He seems to eat fairly well for me but has difficulty at night when the nurses feed him. Yesterday, the doctor was still worried about how much Noah was spitting up and was talking about putting in a GT tube (a feeding tube that goes from the abdomen directly into the stomach). Today, however, I had a long "chat" with the doctor. I explained to him that Noah is eating VERY well with me and only spits up when he burps. I convinced the doctor to increase the amount of food Noah eats from 50 ml to 60 ml (that's 2 ounces). If Noah can gradually make it up to 70 ml in a feeding and keep the wet burps to a minimum, he can go home some time next week!!!! We are SO excited!!! We can't wait to finally bring our little man home.

9 comments:

  1. Oh that would be so so so wonderful!!! We'll be praying for good feeding! Ben and Sara

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  2. "He can go home some time next week!!!!" has the best ring yet!! We will keep praising and praying. Noah is an absolute doll:)!
    Lots of love, Debbie, Fred, Avery and Evan

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  3. I am still praying for you guys. Noah is so precious! It will be so nice for you guys to go home next week as a family of 3!!!! So exciting!

    Rebecca Freshwater

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  4. My dear, you only blog when you have the time/energy/desire to do so! Take care of the important stuff first. We check in (all the time :) and love to read about what you guys are doing... but you have to focus on getting that little guy home... that's what we really want to read about! Love you all so much.

    Amy

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  5. Babies always do better when mama's feed them. Doesn't the DR. know that. Keep the faith and keep being your son's advocate because noone knows him better that you and K.C.

    Michelle K.

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  6. I loved hearing the "fire" in your voice regarding your "char" with the doctor. Noah is in very capable hands - those of his Mommy, Daddy, and Grandparents. You just keep telling 'em how it is going to be! And Noah ... please spit politely!
    Mary Anne

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  7. That word was supposed to be chaT, not chaR!

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  8. Uncle Adam and Aunt MelFebruary 18, 2009 at 7:30 PM

    Keep eating little man. We are so proud of how quickly you are growing and how strong you are. We will see you soon.
    p.s. Lookin' good in your new kicks

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  9. Casey and Rebecca,

    Your little boy is so beautiful! He is blessed to have the two of you as parents! What a precious gift God has entrusted to you. He will give you all you need! We think of you often and check your blog regularly for updates. We are so excited to hear of Noah's progress and soon-to-be home coming! Thanks for sharing your story! God is clearly at work in your family! -the Lehman's

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