Next Week!!!

Yesterday was a bit of a discouraging day and we didn't get home till very late. I actually had to give myself permission NOT to blog. I am sorry to all of you who logged on this morning and did not have anything to read.

These past two days, Noah has had several visitors. My good friend Debbie came Monday morning and today another friend, Lisa, came in the morning and Joanie came in the afternoon. My little man is being spoiled by so many people. He is loves cuddling and sleeping in the arms of lovely ladies.

Dr. Lin, a cornea specialist, came and saw Noah yesterday. He said that Noah's left eye is a "very difficult case". Unfortunately if the capillaries continue to encroach on his cornea, he will loose his sight. There is a brand new clinical trial that Noah may qualify for. It is for a drug that is currently given to diabetes patients but has not been tested on infants. We'll get more information on it later this week.

Noah had several ups and downs with his eating these past two days. He seems to eat fairly well for me but has difficulty at night when the nurses feed him. Yesterday, the doctor was still worried about how much Noah was spitting up and was talking about putting in a GT tube (a feeding tube that goes from the abdomen directly into the stomach). Today, however, I had a long "chat" with the doctor. I explained to him that Noah is eating VERY well with me and only spits up when he burps. I convinced the doctor to increase the amount of food Noah eats from 50 ml to 60 ml (that's 2 ounces). If Noah can gradually make it up to 70 ml in a feeding and keep the wet burps to a minimum, he can go home some time next week!!!! We are SO excited!!! We can't wait to finally bring our little man home.