Daddy's Back at Work

Today started out bright and early. Noah had an MRI scheduled at 8:15 so Nana and I headed to Valley Children's to be with the little man. He needed to be sedated to ensure that he would be perfectly still for the MRI, so while Noah was being taken care of by that anesthesiologist, we had a chance to chat with a friend, Kirsten, who is an ER nurse at Valley Children's. After recovering from a "light sleep", Noah had a visit from his OT, Sandy, and practiced feeding from a bottle again. He is getting much better and only gagged himself twice. He drank 23 ml from the bottle and finished the last 17 ml through his NG tube.
After much cuddling and sleeping, Noah had a visit from Dr. Kelly, the ophthalmologist. Her second examination of his left eye was encouraging. Noah's retina looks good but his cornea is swollen and becoming cloudy. She has increased the eye drops that he is given in hopes of preventing any more damage to the cornea.
We said a sad farewell to our friend Mia today. She has left Valley Children's Hospital and transferred to a hospice home for young children. We have all been touched my Mia and her parents, Sarah and Bryce. They are walking down a crooked path full of uncertainty but are trusting in the Lord to comfort them along the way. We thank them for shepherding us through the trials of tracheotomies and will pray for them in this new chapter of their lives.

Kc returned to work on Monday and has been missing his little man. At one minute passed five, he jumps in his car and speeds towards the hospital to join us. He arrives just in time to change a diaper, empty the ostomy bag, and hold his son while he takes his six o'clock feeding. Unfortunately we have to leave the NICU at 6:30 p.m. because they have a shift change, but Kc is able to spend some quality time with Noah every night.