Blink of an Eye: Road Trip

Monday, March 9, 2009

Road Trip

We're off to Children's Hospital Los Angeles. It's amazing how much "stuff" a little guy needs. The TEAM NOAH bag that holds all of his trach supplies as well as his suction machine was a gift from several of my first grade students and their families. Thank You!

3 comments:

SharilynMarch 9, 2009 at 9:17 AM
What an awesome gift. I love it! Have a safe trip and best of luck with the doctor appointments.
ReplyDelete
Replies
UnknownMarch 9, 2009 at 10:12 AM
Have a safe trip and we'll be praying for you. I hope Noah enjoys his first road trip.
ReplyDelete
Replies
AnonymousMarch 9, 2009 at 2:27 PM
Thinking of you guys today!
--Kathy C.
ReplyDelete
Replies

Add comment

The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.