Blink of an Eye: Noah's first trip

Wednesday, March 4, 2009

Noah's first trip

We found out that we will be heading down to Children's Hospital Los Angeles on Monday to see the cornea surgeon. It will be our first "family trip". While some families go visit relatives or travel to the coast or mountains, the Jacksons go visit doctors. What a life we lead!

3 comments:

AnonymousMarch 4, 2009 at 7:06 PM
We will be praying for safe travels, wisdom for Dr. Song and continued strength for the three of you. You will have many hearts "packed" in your bags to go with you on your journey:-)
Love, Debbie, Fred, Avery and Evan
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UnknownMarch 4, 2009 at 7:27 PM
I hope the trip goes well and look forward to hearing what the doctor has to say.
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AnonymousMarch 5, 2009 at 10:18 AM
I'll be thinking of you all next week. Actually I'll be in Charleston visiting two of my grandchildren, and have packed the Mo Willem's books! Linnea asked if Baby Noah has an ark...Boy does he! All of us are prepared to be safe havens for any of you. Love -
Mary Anne
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.