What a crack up... he's changing so fast and looks good and healthy too. I just praise the Lord for His lovingkindness and power! I can't wait to see you all and hold your little man :) Love, Grandma J
Good job, little guy! Tummy time can sometimes feel like work, but it looks like you have it under control. I've missed hearing about you this past week since I was in Charleston. (One year-old Zane gave me a nasty cold - you won't do that to your greandmothers will you?) Linnea loved her books by Mo Willhelm. Congrats on the achilles surgery outcome. You are one amazing kid!. Love your Team Noah bag - and love all of you. Tell your mom that just because she was born in a cold cold climate does NOT mean you have to dress up like Nanook of the North for Halloween! Hugs from Mary Anne
Is this little fellow a cutie pie or what? Such enthusiasm! He gets a good report card, for sure! Sending love and hugs to Noah, his Mom and Dad, and his grandparents! Ruth
Hello Jackson Family! Congratulations on the birth of your beautiful little boy, Noah. I am excited to have stumbled across your blog, as my husband & I have a daughter with Fraser Syndrome as well. She is almost 3 years old and is the joy of our family! I'd love to chat more with you about our amazing little miracles.
Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.
It's so good to see that you are all home! Tummy time looks like fun :-)
ReplyDeleteWhat a crack up... he's changing so fast and looks good and healthy too. I just praise the Lord for His lovingkindness and power! I can't wait to see you all and hold your little man :)
ReplyDeleteLove, Grandma J
He's getting to be such a strong little man! Good job, Noah.
ReplyDeleteJenny and Will
Good job, little guy! Tummy time can sometimes feel like work, but it looks like you have it under control. I've missed hearing about you this past week since I was in Charleston. (One year-old Zane gave me a nasty cold - you won't do that to your greandmothers will you?) Linnea loved her books by Mo Willhelm. Congrats on the achilles surgery outcome. You are one amazing kid!. Love your Team Noah bag - and love all of you. Tell your mom that just because she was born in a cold cold climate does NOT mean you have to dress up like Nanook of the North for Halloween!
ReplyDeleteHugs from Mary Anne
Looks like he's having a blast!!! Too Sweet!
ReplyDeleteIs this little fellow a cutie pie or what?
ReplyDeleteSuch enthusiasm! He gets a good report card, for sure!
Sending love and hugs to Noah, his Mom and Dad, and his grandparents! Ruth
Hello Jackson Family! Congratulations on the birth of your beautiful little boy, Noah. I am excited to have stumbled across your blog, as my husband & I have a daughter with Fraser Syndrome as well. She is almost 3 years old and is the joy of our family! I'd love to chat more with you about our amazing little miracles.
ReplyDeletehey Super-Mom and Super-Dad!
ReplyDeleteNoah looks amazing!!! It's been a blessing reading up on your posts. Man, he's growing so quickly already!!!