Blink of an Eye: Daddy comes home for lunch

Friday, March 6, 2009

Daddy comes home for lunch

We are so lucky that Kc works very close to home. He is able to come home for lunch and get a little "Noah fix".

Sierra also misses her Daddy during the day - apparently I am not as exciting to play with.

6 comments:

AnonymousMarch 6, 2009 at 12:57 PM
Sierra, you are definitely the great protector of Noah. Both of you are lokkin' good! Thanks for helping out - Trigger
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AnonymousMarch 6, 2009 at 1:37 PM
What a terrific way to stay in touch with all of the milestones you are all experiencing!! Looks like Noah and Sierra are already becoming fast friends!!! Such an amazing story of love.....we're keeping you in our hearts and prayers, Dave and Mary-Sue
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AnonymousMarch 6, 2009 at 4:43 PM
So sweet.

Rebecca Freshwater
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AnonymousMarch 6, 2009 at 9:29 PM
Visions of "Carl's Christmas" come to mind. We love it! And all of you too :-)
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AnonymousMarch 7, 2009 at 7:11 PM
I think you are heading off to LA on Monday...prayers and love go with you. I hope when you get back and rest up a little bit you will feel like a visitor. Can't wait to meet Noah! Kim M.
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AnonymousMarch 8, 2009 at 5:46 AM
We too will be praying for your visit down south. It has been such a privelige to feel so close to you all through your updates. He is such a precious little boy. Wish we were back home so I could babysit or help give you a break. You guys are such dedicated and loving parents. Thank you for your example.
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.