Questions and Answers

Over the past several weeks, many people have asked questions about how Noah is doing. I though I'd address some of the most asked questions.

1. How well is Noah eating?
Currently, Noah is taking about 4 ounces of expressed breast milk through his NG tube every three hours. We met with a lactation consultant and tried breast feeding last week. Noah would have none of it! We have an appointment with an occupational therapist in April to help him with bottle feeding. When he feeds from a bottle, it takes about thirty minutes to drink 1 ounce and he swallows quite a bit of air. I don't know if his difficulty feeding is a result of Fraser Syndrome or just his own uniqueness. The burps that follow a bottle feeding put his Daddy to shame. Because Noah is a little slow in his weight gain, we have suspended the bottle feeding until he sees the OT. We're hoping to pack on a few pounds in the meantime.

2. How is Noah sleeping?
Very well!!! He is currently sleeping about six hours at night. He wakes up only if he needs his diaper changed (Noah HATES to be wet).

3. How is Sierra reacting around Noah?
Sierra LOVES Noah, especially after a bath when he's clean and slathered in lotion.

4. Are those curls?
Yes!!!! Noah's hair is definitely curly.

5. When are you going back to Children's Hospital Los Angeles?
We're heading down south on April 15th. They will study his right eye to see if it is functioning as well as check the progress made by the eye drops in his left eye.