Blink of an Eye: Stayin' Down

Thursday, December 16, 2010

Stayin' Down

Just a quick update to let you know how Mr. Stinkpot is doing.

He was started on Pedialyte today...very slowly. Noah tolerated it quite well and had a great day considering he underwent surgery the day before. Mr. Man played with just about everything in and around his crib, charmed both of his nurses, watched some Signing Time on TV, convinced the doctors that he didn't need oxygen and could go back to room air, traveled from one PICU room to another, and learned how to sign Cuz Jonah {we've been working on that one since we'll be seeing him soon}.

Noah called it a night around six p.m. and I don't plan on being far behind him. He started on formula tonight and if he tolerates that fine and is able to keep all his food down, our MOST FANTASTIC Otolaryngologist will discharge us tomorrow. YEAH!!!!! We've been singing the "stayin' down" song {to the tune of Stayin' Alive} all day today and it seems to be working. Wish me luck and I spend another night at Noah's bedside and attempt to sleep in a recliner.

5 comments:

DebbieDecember 16, 2010 at 9:10 PM
Praying for a tolerable night's sleep tonight and a speedy discharge tomorrow so that you can all have sweet dreams in your own beds tomorrow night. Here's to singing "Stayin' down, stayin' down..."
ReplyDelete
Replies
Betty SmithDecember 16, 2010 at 11:36 PM
Love to you all and hoping you will all be sleeping in Fresno tomorrow night
ReplyDelete
Replies
AmyDecember 17, 2010 at 7:13 AM
Ditto above, and that we will see you soon! Be well!
ReplyDelete
Replies
UnknownDecember 17, 2010 at 11:04 AM
It sounds like things are progressing well. Thanks for the updates. See you in a couple days!
ReplyDelete
Replies
ANewKindOfPerfectDecember 17, 2010 at 8:07 PM
I'm sure you won't get great sleep because those chair beds suck, but I hope you get some sleep at least. I also hope that Noah continueas to do good and you guys are home soon!
ReplyDelete
Replies

Add comment

The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.