Friday, November 19, 2010

PAIN

It's been a very hectic thirty-six hours. We finally have a moment to breathe and are able to update you.

Yesterday morning, Kc and I arrived at the PICU at 7:00 a.m. and were told the doctors had stopped his fentanyl and were wanting Noah to wake up a bit. We spent the next twelve hours trying to comfort a little boy who was VERY uncomfortable. The doctors weren't able to keep on top of his pain, so our Little Man would thrash around and try to get up. All that movement caused quite a bit of secretions which he needed to cough out. The coughing caused tremendous pain to the incision site where they removed the rib graft, which in turn caused him to thrash around even more. It was a vicious cycle and no matter what comfort we tried to provide {pain medications, holding, rocking, singing, Charlie} it simply would not take the pain away. He kept signing "all done" and "go" which just broke my heart. Finally, at around 7:00 p.m. the doctors started him on a low dose of morphine. This seemed to cut the edge, but they had to increase the dose and give it more frequently to help settle Mr. Man. I went back to our hotel that night and Kc {the most wonderful Daddy-0 in the whole wide world} volunteered to stay at Noah's bedside.

Noah had brief moments of sleep {the first he had gotten since the fentanyl was stopped} but was still quite restless. Daddy-O spent the night trying to comfort Mr. Man while preventing him from crawling out of the crib, suctioning his trach, giving him Charlie, and rubbing his back. The most amazing Nana, who traveled up to Stanford with us, came in at 3:30 a.m. so Kc could lay down on the reclining chair and catch a few winks.

I got in at 6:30 a.m. and sent Kc back to the hotel to get some true sleep. Noah's doctor took him off the morphine and switched him to Toradol which seems to have done the trick. By 8:00 a.m. this morning, Noah FINALLY settled into a deep sleep and has been that way most of the day. He occasionally wakes up, checks everything out, cuddles Charlie close and then settles right back down again.

Thank you so much for all of your prayers. Please continue to pray that Noah's pain can be controlled and a good night sleep can be had by all.

7 comments:

  1. Your family will always be in my prayers and I hope that Noah gets better and that everyone can get some sleep and comfort.

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  2. My heart breaks with you. It is good to know that Noah has gotten some relief and sleep. I will continue to pray for wisdom for the docs; strength for you, Kc, and Nana; continued pain relief for Noah; and many winks for all.

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  3. I am glad that Noah finally got some relief!!! I feel so frusterated and angry that they did not give him the toradol right from the get go. But I guess they have to try with the less dosage as possible. Poor guy!!! Hang in there! You guys are in our prayers. Katy Mc

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  4. Girl, I get it. Poor Noah. I know Austin's jaw surgery was brutal on him pain wise...I had to get all Aurora Greenway on them several times!! Next time we go inpatient...Pain Management Team all the way. I'm glad he is resting now. XOXO

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  5. I'm glad to hear that Noah's pain is somewhat under control now and he's able to get some sleep. Good luck with everything and thanks for all the updates!

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  6. FYI - team Noah is still in effect! You have an amazing team of support just ready to call in when you need it... Let us know how we can help. Love you guys.

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  7. Oh man, this post broke my heart! I am so sorry that Noah had such a rough day with pain. I hope the Toradol is keeping him comfortable today so he can rest and recover!

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