Blink of an Eye: Six Months

Tuesday, July 28, 2009

Six Months

Six months ago, Kc shot this picture as we were heading out the door to St. Agnes Hospital. I cannot believe how far we've come in such a short period of time. I knew my life was going to change that day, but I had no idea how much!

Noah got a clean bill of health at his six month check-up yesterday. His current stats are:

Weight: 18 pounds
Length: 26 inches

When Noah was born, he was in the 75th percentile in weight and length. Over the past few months, he dipped down below the 5th percentile. Since his fundoplication and g-tube surgery, however, he is back up to the 5oth percentile. Now that Mr. Man is no longer bulimic, the pounds are just packing on.

2 comments:

DebbieJuly 28, 2009 at 9:49 PM
Wow! 2 pounds, 11 ounces in just one month! That's great!! And the one inch is icing on the 1/2-birthday cake!

Even though my life hasn't changed even an iota compared to your lives since the amazing day of Noah's birth, I can say that mr life has changed because of the blessings that have come into it by watching him grow and develop. I know I've said it before, but it bears repeating: Thank you for sharing your lives and experiences (along with the feelings that come with it all). I count myself blessed for being able to witness the amazing, awe-inspiring things that God has done in the last six months. You are always in our hearts and prayers.

Noah, I am looking forward to seeing MANY more pictures of you with Ryan's bear. It's so fun to see how big you are getting :-)
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CynthiaJuly 29, 2009 at 3:32 PM
Your a beautiful woman of God Rebecca with a beautiful family!
Love ya! Mom J
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.