Blink of an Eye: No Words

Thursday, July 16, 2009

No Words

There are no words to describe the love I feel for my son! He is truly a gift from God and I cannot imagine my life without him. Every day is an adventure that I try not to take for granted. I know this precious time will go by so quickly so I try to savor every moment.

3 comments:

DebbieJuly 16, 2009 at 8:52 PM
What a beautiful picture and beautiful words. Thank you for allowing all of us to savor just a small taste of your daily adventures. Noah has definately tugged at A LOT of heartstrings!
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CynthiaJuly 17, 2009 at 10:28 AM
Love is always a beautiful sight... Love, Grandma J
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AnonymousJuly 17, 2009 at 4:41 PM
Thank you so much for allowing us to join you on this journey. Noah is truly a gift from God. Love is such a wonderfuly thing.
Love Aunt Mary Lynn
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.