Day Two

It's hard to believe that it is only Friday. These past three days have been the longest in our lives. After our first night of real sleep, aside from waking up every three hours to pump, we received a phone call at around 10:00 a.m. this morning from Noah's nurse. She told us that our little stinker decided to pull out his breathing tube that was left in following his colostomy surgery last night. With the tube out, he was not able to breathe on his own. He began to crash and the nurses were unable to get the breathing tube back down his trachea. They called the ear, nose and throat doctor and he was finally able to get a small tube down with the help of a scope. The tube was much smaller than was recommended for Noah's size and the doctor was concerned. They decided to do an emergency procedure to look down his throat and see what was going on.

At around 3:00 p.m. Noah was wheeled away. The doctor used a scope and took several pictures of his trachea. He noticed there was severe narrowing of the trachea just below the vocal cords. He was able to put a slightly larger tube down which helps Noah breathe better. Unfortunately, this is only a temporary fix. On Monday, Noah will undergo a tracheotomy. He will have a hole cut in his throat to bypass the narrowing. The doctor is hopeful that the trach tube will only be in for a few years and that it will not affect his ability to speak.

Kc and I met with the geneticist while Noah was in surgery. He believes that Noah's complications are not the result of a chromosomal abnormality, but rather a genetic disorder. There will be a detailed chromosomal test done, but the geneticist is confident that it will come back normal.

Thank you all so much for your kind words, thoughts and prayers. Right now, Kc and I are doing well and hanging in there. We are taking each day (or each moment) as it comes and relying on each other and you all for strength. Noah is our son, a gift from God. We can't wait for him to meet you.