Friday, January 30, 2009

Day Two

It's hard to believe that it is only Friday. These past three days have been the longest in our lives. After our first night of real sleep, aside from waking up every three hours to pump, we received a phone call at around 10:00 a.m. this morning from Noah's nurse. She told us that our little stinker decided to pull out his breathing tube that was left in following his colostomy surgery last night. With the tube out, he was not able to breathe on his own. He began to crash and the nurses were unable to get the breathing tube back down his trachea. They called the ear, nose and throat doctor and he was finally able to get a small tube down with the help of a scope. The tube was much smaller than was recommended for Noah's size and the doctor was concerned. They decided to do an emergency procedure to look down his throat and see what was going on.

At around 3:00 p.m. Noah was wheeled away. The doctor used a scope and took several pictures of his trachea. He noticed there was severe narrowing of the trachea just below the vocal cords. He was able to put a slightly larger tube down which helps Noah breathe better. Unfortunately, this is only a temporary fix. On Monday, Noah will undergo a tracheotomy. He will have a hole cut in his throat to bypass the narrowing. The doctor is hopeful that the trach tube will only be in for a few years and that it will not affect his ability to speak.

Kc and I met with the geneticist while Noah was in surgery. He believes that Noah's complications are not the result of a chromosomal abnormality, but rather a genetic disorder. There will be a detailed chromosomal test done, but the geneticist is confident that it will come back normal.

Thank you all so much for your kind words, thoughts and prayers. Right now, Kc and I are doing well and hanging in there. We are taking each day (or each moment) as it comes and relying on each other and you all for strength. Noah is our son, a gift from God. We can't wait for him to meet you.

5 comments:

  1. Jessica has kept us posted throughout your pregnancy. Thank you for sharing your gift with all of us. Even those of us who may not know you personally. Our prayers are with you both and Noah, God has truelly blessed you with a special gift. You too, are very special People.
    Chris & Marti Hubbard (Jessica Holts Parents)

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  2. Thanks for keeping us updated. We can't wait to meet the little guy! Our days are filled with thoughts and prayers for the three of you.

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  3. Your love for Little Noah shines through each message here! He is so lucky to have such devoted and loving parents. We're thinking of your family often and can't wait have Will meet Noah. Kevin, Jenny and Will Tienken

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  4. Our thoughts and prayers are with you! We can't wait to meet Noah. Noah is lucky to have the two of you as parents. You have given him unconditional love! Love, Noelle, Buck and Kiali

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  5. Wow, God's Sovereignty is mysterious. You guys are obviously covered by such a great support system. We'll be praying from afar! You three are beautiful. Alyssa Highland (nee Long)

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