Blink of an Eye: I love you...and bye-bye

Tuesday, August 30, 2011

I love you...and bye-bye

Noah loves Ryan Bear, making animal sounds, and you.

Bye-bye.

6 comments:

UnknownAugust 30, 2011 at 11:15 AM
Awesome. Love hearing that little guy talk.
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Mimi ReedAugust 30, 2011 at 10:01 PM
That's enough to melt your heart!
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Cuz Sue in AZAugust 31, 2011 at 3:10 AM
Love to hear him talk!
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MelissaAugust 31, 2011 at 9:16 AM
Amazing...that is beyond heart melting! A little miracle right before our eyes...wow how Blessed are we all to love this little man oh so much :)
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RuthSeptember 1, 2011 at 8:48 PM
Dear Noah,
We, your extended family, are puffing up with pride and happiness at your terrific signing skills and your new-found voice. We felt all along, in our hearts, that you could do it, and now, here you are, introducing your bear and singing the alphabet song. We could not be happier and we thank you for the joy you bring just by being yourself. Love and best wishes to you and your Mommy and Daddy. :-)
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Vanessa SmithSeptember 3, 2011 at 9:44 AM
Tears :)
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.