Blink of an Eye: Just a Reminder

Monday, May 23, 2011

Just a Reminder

To my dear sweet Bubs,

Sometimes I take for granted all the things that you have already learned and forget that you are still just a little guy...a toddler to be exact. Each and every single day you will experience new and wonderful things. Experiences that you will learn from. Sometimes those lessons are positive, other times they are negative. That is the reality of life. You have SO many lessons yet to learn and so many lessons that will need to be repeated...over, and over, and over again.

It is with this knowledge that I must remind you that it is NEVER ok to pull your trach out. It tends to freak people out. This is especially true when Daddy and I are out on a date and you are home with a sitter.

Once is enough. Twice is plenty. Seven times is just too many. Thank you!

Love,

Mama

2 comments:

AprilMay 24, 2011 at 6:56 AM
Laughing :)
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RuthMay 25, 2011 at 8:27 PM
Noah must begin to limit his shinanigans with his trach to times when Mom and Pop are home or when he's being baby-sat by the Senior Smiths. What a little stinker he is!
We all long for, and pray for the day when his trach will be removed by his physicians, for good! :-)
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.