Blink of an Eye: Playing

Friday, July 2, 2010

Playing

With his arms all wrapped up, it is very hard for my little Stinkpot to play with most of his toys. Yesterday, I found him playing in the bathroom with the toilet paper roll.

What?!? I was just playing!

4 comments:

Gramma ReedJuly 2, 2010 at 8:37 AM
The first picture says "I didn't do it, look at these hands." Second one says "Okay, I did it, but seriously, how cute am I?!"
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Vanessa SmithJuly 3, 2010 at 8:21 AM
Haha...classic! I totally agree with my mom's assessment!
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CynthiaJuly 4, 2010 at 3:42 PM
He knows how to put on the charm mom, :) to cute!
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MelissaJuly 5, 2010 at 9:53 PM
that is hysterical!! What a resourceful little man :) How fun...and he is too cute
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.