Blink of an Eye: 1 1 1 1

Today, Noah is 1 year, 1 month, 1 week and 1 day old. How cool is that???

The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.

Blink of an Eye

The Followers

The Archive

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Noah's Signs

Monday, March 8, 2010

1 1 1 1

4 comments:

The Story

The Couple - Kc and Rebecca

The Angel - Ryan Valentine

The Adventure - Noah Stone

The Blessing - Ava Rayn

The Surprise - Ezra Cole

The Dog

The Others

The Map

The Feed

Our Family

Daddy & Noah

Kc & Rebecca

The Counter