Blink of an Eye: Fourteen Months

Sunday, March 28, 2010

Fourteen Months

What a beautiful month we have had in CA. We welcomed a new {girl} cousin, had a visit from Cuz Jonah {and his parents}, spent quality time with friends {from near and far}, and had several appointments with doctors. Noah's current stats are:

Weight: 26 pounds 4 ounces
Height: 31 1/2 inches

This Tuesday morning, Noah will undergo surgery to fix the strictures in his urethra. We are anticipating an easy procedure and should be home that very same night. Here's to one tough little man with one straight little tube!

5 comments:

DebbieMarch 28, 2010 at 10:09 PM
Ryan's bear is looking mighty small compared to Noah these days :-) I'll be praying for everyone (Mama, Daddy-O, Noah, and the doctors) on Tuesday.
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Vanessa SmithMarch 29, 2010 at 7:12 AM
He is so big. He and Jonah are no longer neck ad neck. Noah has definitely taken a big lead!
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CynthiaMarch 29, 2010 at 2:59 PM
Praying for you Noah and your mom and dad... as always :D
We Love you!
Grandma and Grandpa J
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AnonymousMarch 29, 2010 at 4:33 PM
Pray for smooth sailing! Katy Mc
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UnknownMarch 29, 2010 at 5:33 PM
Good luck tomorrow, little man. Be strong (...you always are).
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.