Blink of an Eye: Bye-Bye

Monday, December 21, 2009

Bye-Bye

Noah has recently learned how to wave bye-bye. He doesn't quite know what it means, but he loves to wave at people he know.

1 comment:

DebbieDecember 21, 2009 at 11:27 AM
I love it! The trouble with little ones learning to wave "Bye-bye" is that it is so darn cute that oftentimes, the people they are waving to don't leave when they intended because they want to see it over and over again :-) At least, I know I am guilty.
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.