Blink of an Eye: Sleeping

Tuesday, June 9, 2009

Sleeping

Poor guy. Because of the bar between Noah's braces, sleeping on his side is a bit more precarious than sleeping on his back.

If you want to learn to sleep like Noah, wear a snowboard to bed.

4 comments:

DebbieJune 9, 2009 at 10:11 PM
I think that after all of the bells, beeps, and bars that Noah has trooped his way through in the middle of the day and night, he will be able to sleep through anything, anytime, anywhere :-) Noah, you are one tough cookie!
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UnknownJune 11, 2009 at 9:09 PM
You have a cute little man there.
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AnonymousJune 13, 2009 at 3:58 PM
I to have a son with fraser syndrome. He was born jan 4 2009
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AnonymousJune 20, 2009 at 5:40 PM
Too cute! How much does he weigh now? He looks so healthy! Oops! I can't log on so I guesss I will be annoymous today. ( Peyton's mommy)
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.