Blink of an Eye: NG Tube Out

Tuesday, June 2, 2009

NG Tube Out

On Friday, the day of Noah's big surgery, he was NPO. Seeing as how he would not need his NG tube anymore, we let him pull it out. Generally, we had to watch Noah's little fingers because they LOVED to grab his tube and pull. It was considered a good day if we didn't have to put his NG tube back in because he either pulled it out or he puked it out. On Friday morning, however, I pulled the tape off his cheek and let a very hungry Noah pull.

In order to watch the movie, you're going to have to rotate your computer counter clockwise...or just tilt your head. I used my digital camera to video Noah and cannot figure out how to rotate the movie. Sorry.

6 comments:

DebbieJune 2, 2009 at 9:29 AM
That's great! I can't imagine what that must have felt like to close that chapter in Noah's young life. All of the pieces seem to be falling into place. Rotating a screen or tilting my head is a VERY small price to pay for being a witness to such milestones. Thank you!!
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denistonsJune 2, 2009 at 9:43 AM
There you go little man, rip that darn thing out!!!! Congradulations!! Noah, you look like your mommy and daddy are taking really good care of you!! God bless you and your family!!
- denistons
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AmyJune 2, 2009 at 10:26 AM
Good Job Noah, a little grody, but it's nice to see you tube free!
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BeckyJune 2, 2009 at 9:01 PM
Good job Noah! Those things are yucky! No more NG tube! Yay!
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Mary AnneJune 3, 2009 at 9:09 AM
Super job, Super man! Next step: flinging strained peas?
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Vanessa SmithJune 3, 2009 at 3:18 PM
How satisfying for him! All this time trying and trying to get rid of that thing, and now it's gone. Way to go buddyroe!
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.