Blink of an Eye: Smoking With Daddy

Tuesday, April 7, 2009

Smoking With Daddy

Now that we're home from the hospital, and all members of the Jackson family have caught up on their sleep, life is beginning to return to "normal". One new addition to our daily routine are Noah's nebulizer treatments. We have our own portable nebulizer that administers an antibiotic mist into Noah's trach. Daddy just LOVES to spend time with his little guy!

4 comments:

The Tanner FamilyApril 7, 2009 at 5:10 PM
Noah looks like he has gotten used to this new addition to his routine as well and is taking everything in stride :-) It's so good to see him looking so chipper!
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James MenloApril 7, 2009 at 7:25 PM
"What a cutie pie!" says Kevin Tienken (written by Jenny Tienken) :0
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Betty SmithApril 7, 2009 at 9:25 PM
Noah is such a trooper. He goes with the flow like his Mom and Dad. Kudos to you both for raising such a great kid.
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Uncle Adam and Aunt MelApril 8, 2009 at 9:03 AM
Look at you hamming it up for the camera. Peeking out around daddy for photo opportunities. What a cutie.
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.