Blink of an Eye: Off To LA

Wednesday, April 15, 2009

Off To LA

Well...we're off to Children's Hospital Los Angeles. Noah will have the procedure done to determine if his right eye is functioning. Because we are Dr. Song's first procedure of the day, we need to be at the hospital at 5:45 a.m. That means that we're leaving home at 2:00 a.m. Wish us luck!!!

6 comments:

Rachel BratvoldApril 15, 2009 at 2:33 AM
Well at least you shouldn't run into any traffic! We are praying for a safe trip and good news from the doc!
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AnonymousApril 15, 2009 at 6:42 AM
Godspeed and may all the news be good!
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The Tanner FamilyApril 15, 2009 at 6:43 AM
By now, you are already in LA and, hopefully, Noah's procedure is underway and maybe even done. Here's hoping that you might get home at a decent time and enjoy light traffic both ways :-) You have our prayers as well for safe travels and good news!
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AnonymousApril 15, 2009 at 9:18 AM
Lots of prayers and love are being sent your way from Kansas. We are so proud to be part of Team Noah.
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SharilynApril 15, 2009 at 12:26 PM
I hope the trip goes well. I will be praying for all of you.
Love,
Shari
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AmyApril 15, 2009 at 2:15 PM
So you got up a little extra early to blog! You are indeed dedicated :) I hope everything went smoothly today.
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.