Blink of an Eye: Computer Problems

Thursday, April 30, 2009

Computer Problems

Mommy, Daddy and I are doing just fine, however, we have been experiencing problems with somthing called a computer (whatever that is). As soon as we are back up and crawling, we will give an update on what's been happening.

1 comment:

Debbie TannerApril 30, 2009 at 10:29 PM
Noah, your mommy and daddy have given you such a great sense of humor! I love it!! Before we know it, you will know more about that "something called a computer" than we all do :-)
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.