Noah's surgery today went well. We arrived at Children's Hospital Central California bright and early. Mr. Man was a happy little guy even though he was probably a bit hungry. Once we were in the Pre-Op room, however, everything started to go downhill. Our lovely nurse started to take Noah's vitals and connect the blood pressure cuff as well as the pulse-ox monitor...well...I think that brought back a wave of emotions. Bubs started screaming and crying. He wanted to go to leave the hospital and go to the car. Noah told everyone "NO", including our fantastic doctor when he entered the room. It wasn't until the anesthesiologist gave my Little Man a bit of "happy juice" that he finally calmed down.
In order to pass the time before surgery, Noah and I sang a few songs.
The surgery was short and sweet and in no time at all we were all back in the recovery room. The nurses actually came and got me a bit earlier and rushed me to the initial post-surgery room because Noah was a tad bit agitated and they needed help restraining calming him down. Bubs was so ready to leave that he was pulling off all the leads that were attached to his chest as well as the IV placed in his wrist {ouch!}.
Our very patient nurse agreed to remove every last monitor and finished taking out the IV and pretty soon Noah was snuggling, quietly in my arms. We didn't have to stay in the recovery room too much longer and were back at home by noon. Pheww!
The rest of our day consisted of watching NEMO, snuggling on the sofa, playing with every single shark toy available, a ridiculously long nap {for both Noah and I}, and a splashy bath.
Bubs talked quite a bit this afternoon about "go to the hospital", "put on blue jammies", and "hello Nurse". When I asked him why he was crying so much at the hospital, he replied, "Noah scared. Noah get owie." It just broke my heart. My poor Little Guy has such fears about hospitals...and rightfully so. While he may not remember details about all of his past hospitalizations, he does remember the feelings of fear and pain. Those feelings are quite powerful and strong.
I think we will need to do some major counseling or have an intervention or something because Mr. Man will be back in the hospital in six months or so...the tube that was placed in his tear duct will need to come out. EEK!
Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.
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