Blink of an Eye: Thirty-Six Months

Sunday, February 12, 2012

Thirty-Six Months

Bubs is Three Years Old!!! Can you believe it? I sure can't. He's been bringing us joy for the past thirty-six months...even through all the ups and downs.

Noah's current stats are:

Weight: 42 pounds
Height: 38 1/2 inches

Once again, our wonderful friend Lisa, from Bug O' Boo, created Noah's Under the Sea birthday shirt. I think she truly outdid herself this time. I loved the pirate shirt as well as the Noah's Ark shirt, but this one truly takes the cake!

Bubs points out all the sea creatures on the front and has requested to wear it every morning since he got it.

Bubs continues to love his Ryan Bear!

Happy Birthday Bubs!

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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.