Blink of an Eye: We're Home

Saturday, September 11, 2010

We're Home

We're Home!!!!!!!!

Noah continues to do quite well. He is recovering quickly and has gained back most of his strength. He is playing and moving all over the place and only occasionally needs a bit of cuddle/down time. I'm ready for a relaxing weekend!

4 comments:

ANewKindOfPerfectSeptember 11, 2010 at 5:50 PM
Wow, way to go Noah! I am glad he is home and feeling well. I hope you all have a very relaxing weekend as he recovers!
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MelissaSeptember 11, 2010 at 7:44 PM
wooo hooo...hallelujah!! yes enjoy the weekend and all those cuddles in between :) lots of love
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DebbieSeptember 11, 2010 at 9:50 PM
Such good news! It's great how quickly kids bounce back!!
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AprilSeptember 13, 2010 at 7:40 AM
HOORAY FOR HOME!!
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.