finally caught up with the blog...the lake looked like so much fun and naps really?? soooo nice!! way to gooooooo noah man!!! those feet will be a walking before we even know it!! i'm so proud of him, what an exciting time for the jacksons. ok, loooove him splishing and splashing...how adorable :) xoxo
Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.
Too cool! I love it!! This would put a smile on my face any day :-)
ReplyDeleteAh, the simple joys of life. :)
ReplyDeletefinally caught up with the blog...the lake looked like so much fun and naps really?? soooo nice!! way to gooooooo noah man!!! those feet will be a walking before we even know it!! i'm so proud of him, what an exciting time for the jacksons. ok, loooove him splishing and splashing...how adorable :) xoxo
ReplyDeleteI love how happy his face looks!! Good thing ya'll have such a big sink!
ReplyDeleteYou are getting so so big Noah! Fun video :D very fun to watch for Grandpa and I... love to you all!!!
ReplyDeleteI like how his feet make a guest appearance towards the end. Katy Mc
ReplyDeleteHi Beck! So super cute! And I watched him walk about 6 times in a row!
ReplyDeleteI just found your blog from another! Your son is so cute. :) He sure does love to spash!
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