Blink of an Eye: Seventeen Months

Monday, June 28, 2010

Seventeen Months

Our little guy continues to do well after his latest surgery. He is learning how to play and maneuver toys without being able to grab them.

Noah's current stats:

Weight: 26 pounds 10 ounces
Length: 33 inches

Mr. Man is just such a happy guy!

3 comments:

AnonymousJune 30, 2010 at 11:08 PM
He is a happy guy and so stinkin' cute! Katy Mc
ReplyDelete
Replies
CynthiaJuly 1, 2010 at 6:01 AM
You are such a happy and brave big/little guy Noah! See you tonight! God Bless you. :D Love, Grandma Cindy
ReplyDelete
Replies
Vanessa SmithJuly 1, 2010 at 8:53 AM
He has got such a sweet spirit! Miss his smile.
ReplyDelete
Replies

Add comment

The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.