Blink of an Eye: Fifteen Months

Saturday, May 1, 2010

Fifteen Months

It's been an interesting week to say the least. On Monday, Noah was diagnosed with bronchitis. On Wednesday, Noah was back at the pediatrician's office with the stomach flu. He had a few days that were full of hacking and puking, but is doing M-U-C-H better today.

As of Wednesday, Noah's stats are:

Weight: 26 pounds 6 ounces
Height: 31 1/2 inches

3 comments:

Vanessa SmithMay 2, 2010 at 9:56 AM
You dwarf that little bear now Noah! You big man you.
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CynthiaMay 3, 2010 at 6:58 AM
Good to see you Noah that you're up and about and feeling better! You are getting bigger all the time!!! Love, Grandma
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Kimberly ReedMay 3, 2010 at 9:00 AM
Way to grow Noah!;)
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.