Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.
Well said, Noah.
ReplyDeleteRebecca, Happy Mother's Day!
Quite the vocab for such a little man...but you are right on the money! Happy Mothers Day Sis!
ReplyDeleteWell said Noah, and all of it so true!!! Your Mommy is amazing
ReplyDeleteAwww! He really loves you!
ReplyDeleteHAPPY MOTHER'S DAY Rebecca!!! Good job Noah :)
ReplyDeleteLove, Grandma and Grandpa Jackson
The picture is so beautiful, it just brings instant tears. What a gorgeous mom and a total BISCUIT!
ReplyDeleteWhat an amazing mom. Happy Mother's Day, belated. xoxoxxoxo Your cousin!