Blink of an Eye: New Hat

Saturday, November 14, 2009

New Hat

What do you do with an empty 2 x 2 box (the gauze squares that go under his trach)? You put it on your head, of course.

I'm just the coolest thing around!

3 comments:

Vanessa SmithNovember 14, 2009 at 2:51 PM
Why do we buy them toys and clothes, when a plain old box will do?
ReplyDelete
Replies
DebbieNovember 14, 2009 at 9:36 PM
Noah certainly does know how to enjoy the simple things in life and he's learning to use something designed for one use for another. How creative!
ReplyDelete
Replies
CynthiaNovember 15, 2009 at 9:26 AM
You look great in white Noah. Cool hat there...
ReplyDelete
Replies

Add comment

The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.