Blink of an Eye: Miner of the Week

Tuesday, March 3, 2015

Miner of the Week

Noah is the Student of the Week in kindergarten. He is so excited because he gets to bring in pictures for the wall, bring in 5 items for sharing, and take Miner Bear home.

He had so much fun picking out the pictures. There are some of his sister (of course), one of his Cuz Jonah, two from our last trip to Disneyland, one of his Book Buddy at school (who happens to be an old student of mine), and one with the family this past Christmas.

1 comment:

MelissaApril 11, 2015 at 8:28 AM
Oh how fun!! What a great way to celebrate your little man at school :)
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.