Blink of an Eye: Noah Was Here

Tuesday, April 19, 2011

Noah Was Here

Noah was here...

With his signature bowl hat.

4 comments:

CynthiaApril 19, 2011 at 7:09 AM
Looks like great fun Noah!!!!
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Mimi ReedApril 19, 2011 at 8:00 AM
Wow! Are you sure he didn't have an accomplice? Auntie Nessa was big on sporting things on her head. I have a picture somewhere of the "bowl" style that she also favored.
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DebbieApril 19, 2011 at 1:22 PM
My mom used to have a sign posted on the game room door of the house that I grew up in. It read. "A creative mess is better than tidy idleness." I repeat that to myself quite a bit :-)
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MelissaApril 19, 2011 at 3:44 PM
Hey I like that mantra..."A creative mess is better than a tidy mess." It's amazing how someone so tiny can do so much "creative messing"...way to go Noah!! Looks like you straped on your thinking bowl...
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.