When Jonah {and his parents} were here for Christmas, we took the annual "Cuz Photo". If you remember, we took a picture with Cuz Hunter and Cuz Brooklyn over Thanksgiving. Jonah and Noah truly had fun together. They were such angles when the photo shoot started.What did you say?Hey...you've got pretty cool jammies on. What a difference a year makes!
Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.
Don't you just love those kids!!!!!!!
ReplyDeleteJonah and Noah look so cute together. Two peas in the pod I bet!
ReplyDeleteLove the one of them "chattin'" it up. Sooo cute! They were really fun to watch as they played together.
ReplyDeleteSo cute...love how you put these pics together...you are awesome :) We've got some pretty cute kids...with such cute smiles :)
ReplyDeleteLovin' it! It's so cool that the cousins are close in age; I bet they will be very close :-)
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