Noah continues to have the cutest pouty face ever. If you look real close, you can see my pouty face reflected in his glasses. Perhaps that's who he learned it from.
Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.
It's hard not to love those pouty faces.
ReplyDeleteI think Noah and Jonah should have a pouty-face-showdown!
ReplyDeleteOh and Jack too! We should play the banjo when they do it!
ReplyDeleteKATY Mc
Boy, he's playing that one up, isn't he? Enough to melt your heart.
ReplyDeleteWhat kind of catastrophe could elicit such a dramatic response? Poo in his diaper? A noise maker taken away? Or is this just his "Blue Steel" face?
ReplyDeleteWOW...that is quite the lip :) You must give back what you took away...that face is just too sad.
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