Blink of an Eye: August 2016

Monday, August 22, 2016

First Day of Second Grade

My Little Man isn't so little anymore!

He started second grade and Mama and Daddy got to walk him to class.

It is so fun to look back on his first day pictures.

Preschool - year 1

Preschool - year 2

Kindergarten

First Grade

Wednesday, August 10, 2016

Two Months - Ezra

Our little "Skeeziks" is two months old. He is a chunky little monkey and loves to eat! Ezra is gaining a lot more head and neck control although tummy time is not his favorite!

Ezra's eyes continue to be blue and his hair is straight brown. He has given us a few smiles this past week and loves to look at the toys that are hanging on his playmat.

Noah's two month pictures are here and Ava's two month pictures are here.

Current stats:

Weight: 13 pounds 4 ounces

Height: 24 inches

The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.