Blink of an Eye: Cousins

Thursday, June 23, 2011

Cousins

Last week, we were blessed to have both the Susanville Smiths as well as the Iowa Smiths in Fresno. It was an awesome week full of cousins, laughter, tantrums {only a few}, oranges, cupcakes, birthday celebrations {Jonah}, 40th anniversary celebrations {Nana and PopRo}, and bubbles.

Jonah's second birthday was celebrated with the cutest farm party.

Noah and Lizzy enjoyed the bubble machine.

Gotta love those bubbles!

Hunter loves his new hat. Howdy partner!

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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.