Bubs is working so very hard to talk. He whispers and chatters and mumbles quite a bit now.
Here he is showing you his "phishhhh" AKA fish. And then...he get's bored...and wants to go outside.
Showing posts with label speech. Show all posts
Showing posts with label speech. Show all posts
Friday, October 7, 2011
Wednesday, October 5, 2011
ABC Exercize Man
Who knew that the ABC song {sung by Rachel Coleman from Signing Time} could cause such joy and energy in a little man!
Tuesday, August 30, 2011
Sunday, August 28, 2011
Friday, August 26, 2011
ABC Song
Now that Noah had entered into the "Naked Neck" club {decanulated} he is trying very hard to vocalize. He loves to make animal sounds and even has a few words he can say. His voice is quite raspy and doesn't go above a whisper...but it is still a voice...and Bubs is trying to make more noise each and every single day.
Here, Mr. Man is signing his ABC's for you. He gets more and more silly as the song goes on, but you can hear his laughter and sweet little whispers.
I am looking forward to seeing how much more sound he can make once his stoma {blow hole} is closed in September.
Sunday, May 8, 2011
Happy Mother's Day
Daddy-O and I had the perfect plan for the most amazing Mother's Day gift ever. We knew it would be the greatest gift ever. We knew she had always wanted it. We knew it would blow her mind. We knew it would bring her to tears {which it did}.
We worked hard all day long.
On. Off.
On. Off.
On for longer. Off.
On for even longer. Off.
On.
Can you believe it? My Passy is on! And I'm breathing! It's on!
And even more than that...I spoke my first word...
We worked hard all day long.
On. Off.
On. Off.
On for longer. Off.
On for even longer. Off.
On.
Can you believe it? My Passy is on! And I'm breathing! It's on!
And even more than that...I spoke my first word...
Make sure your volume is turned ALL THE WAY UP!
Wednesday, July 21, 2010
Medical Updates
The past two weeks have been VERY busy for the Jacksons. Noah has had five doctor's appointments {two of them out of town}, we have gone on two mini weekend vacations, and have had countless play dates and BBQs with family and friends. Here are some updates on what we learned at the doctors appointments.
Plastic Surgery:
Noah's hands continue to heal quite nicely. They were wrapped continuously for two weeks post surgery. After those initial two weeks, we unwrapped his hands nightly, gave him a bath, let the hands dry out, and then wrapped them back up. As of his appointment last week, Noah's right hand is doing excellent and doesn't have to be wrapped any more. His left hand has a bit more healing to do and needs to continue to be wrapped. Although, as you can see from pictures in previous posts, we've taken liberties in how long we let his hand "dry out".
Ophthalmology:
Last week, we headed down to Children's Hospital Los Angeles to see Noah's eye doctor. It was a LONG trip but Noah did well in the car. The Dr said Noah's left eye continues to look good and so we're going to continue his current eye drops. He also decided that Noah needs glasses. While Noah is a bit near sighted, the primary reason for the glasses is to protect his eye from possible injury. Because he's only got one, we need to do everything we can to keep it safe. We have ordered the glasses {very cute plastic children's ones} and they should be here in the next week or so.
Otolaryngology:
After Noah's last scope of his trachea, our ENT Dr referred us to a specialist at Children's Hospital Stanford. We drove up to Stanford yesterday, and once again, Noah did quite well in the car. We met our AMAZING Dr and were quite impressed with the clinic. The first thing they did was stick a long camera down Noah's nose straight into his trachea so they could get a good look around {while he was awake}. Needless to say, Noah DID NOT like this. The first thing the Dr saw was how large Noah tonsils were. "Those have got to go," he exclaimed. He was also able to see that Noah's vocal chords were "trying" to move while he was screaming and crying. "Very encouraging," he said. We discussed the MAJOR surgery to re-build Noah's trachea and possibly take out his trach. There is about a 70% success rate with severe cases like Noah. We head back up to Stanford on September 8 so the Dr can do his own scope and take out Noah's tonsils and adenoids. At that point, he will be able to make a plan whether or not to proceed with Noah's laryngotracheoplasty.
I am so blessed to be on summer vacation and not have to take days off work for all of these appointments. While I would much rather be a SAHM {stay at home mother}, I have to give thanks for the job I have, the flexibility it allows us, and the health benefits it gives Noah. We've got some major surgeries ahead of us, so I'm hoping to make the most of this summer and have as much fun as possible!
Plastic Surgery:
Noah's hands continue to heal quite nicely. They were wrapped continuously for two weeks post surgery. After those initial two weeks, we unwrapped his hands nightly, gave him a bath, let the hands dry out, and then wrapped them back up. As of his appointment last week, Noah's right hand is doing excellent and doesn't have to be wrapped any more. His left hand has a bit more healing to do and needs to continue to be wrapped. Although, as you can see from pictures in previous posts, we've taken liberties in how long we let his hand "dry out".
Ophthalmology:
Last week, we headed down to Children's Hospital Los Angeles to see Noah's eye doctor. It was a LONG trip but Noah did well in the car. The Dr said Noah's left eye continues to look good and so we're going to continue his current eye drops. He also decided that Noah needs glasses. While Noah is a bit near sighted, the primary reason for the glasses is to protect his eye from possible injury. Because he's only got one, we need to do everything we can to keep it safe. We have ordered the glasses {very cute plastic children's ones} and they should be here in the next week or so.
Otolaryngology:
After Noah's last scope of his trachea, our ENT Dr referred us to a specialist at Children's Hospital Stanford. We drove up to Stanford yesterday, and once again, Noah did quite well in the car. We met our AMAZING Dr and were quite impressed with the clinic. The first thing they did was stick a long camera down Noah's nose straight into his trachea so they could get a good look around {while he was awake}. Needless to say, Noah DID NOT like this. The first thing the Dr saw was how large Noah tonsils were. "Those have got to go," he exclaimed. He was also able to see that Noah's vocal chords were "trying" to move while he was screaming and crying. "Very encouraging," he said. We discussed the MAJOR surgery to re-build Noah's trachea and possibly take out his trach. There is about a 70% success rate with severe cases like Noah. We head back up to Stanford on September 8 so the Dr can do his own scope and take out Noah's tonsils and adenoids. At that point, he will be able to make a plan whether or not to proceed with Noah's laryngotracheoplasty.
I am so blessed to be on summer vacation and not have to take days off work for all of these appointments. While I would much rather be a SAHM {stay at home mother}, I have to give thanks for the job I have, the flexibility it allows us, and the health benefits it gives Noah. We've got some major surgeries ahead of us, so I'm hoping to make the most of this summer and have as much fun as possible!
Monday, June 22, 2009
We're Speechless
This past week has been a pretty busy one filled with doctors appointments and procedures. We've received some fairly good news as well as extremely disappointing news. Last Monday, Noah saw Dr. Hodge who checked his G-Tube as well as his bottom. Fortunately, everything is looking great. We see the doctor again in two weeks and if all is well, he'll schedule the reversal of Noah's colostomy. I look forward to not having bags that leak and come off on a regular basis, but I'm afraid that will be replaced with poopie diapers.
On Thursday, we saw Dr. Kaji, Noah's urologist. She told us that Noah's kidneys look even better than when he was first born. Noah has strictures in his urethra, so rather than having a straight tube, it looks like several sausage links. Dr. Kaji assures us this can be corrected surgically and we anticipate that to happen some time in November.
Today, Noah and I headed back to Children's Hospital for a trachioscopy. Noah was not very excited to be back at the hospital.
Dr. Dunham used a scope to look at Noah's trachea. Unfortunately, it has gotten significantly worse than when he was born. Noah's trachea has completely fused shut. Dr. Dunham looked at it from the top through his mouth as well as from the bottom through his trach hole. Noah will need extensive reconstructive surgery in about a year to open up his trachea and allow him to breathe naturally. Along with the fusing of his trachea, Noah's vocal cords have fused together. Dr. Dunham does not think Noah will be able to vocalize once the trach comes out. While we are devistated by the news, we are always looking for the joy and humor in every situation. God has placed us on this path and the amazing people we have met along the way have greatly touched our lives. We're excited to see what God has in store for The Jackson family as we all learn sign language.
On Thursday, we saw Dr. Kaji, Noah's urologist. She told us that Noah's kidneys look even better than when he was first born. Noah has strictures in his urethra, so rather than having a straight tube, it looks like several sausage links. Dr. Kaji assures us this can be corrected surgically and we anticipate that to happen some time in November.
Today, Noah and I headed back to Children's Hospital for a trachioscopy. Noah was not very excited to be back at the hospital.
Dr. Dunham used a scope to look at Noah's trachea. Unfortunately, it has gotten significantly worse than when he was born. Noah's trachea has completely fused shut. Dr. Dunham looked at it from the top through his mouth as well as from the bottom through his trach hole. Noah will need extensive reconstructive surgery in about a year to open up his trachea and allow him to breathe naturally. Along with the fusing of his trachea, Noah's vocal cords have fused together. Dr. Dunham does not think Noah will be able to vocalize once the trach comes out. While we are devistated by the news, we are always looking for the joy and humor in every situation. God has placed us on this path and the amazing people we have met along the way have greatly touched our lives. We're excited to see what God has in store for The Jackson family as we all learn sign language.
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