Blink of an Eye: Noah's Journey

Thursday, March 3, 2011

Noah's Journey

Several weeks ago, we were contacted by Children's Hospital Central California and asked if we would like to share Noah's story. We agreed...and here it is...

http://www.childrenscentralcal.org/PressRoom/HospitalNews/Pages/Noah%27sJourney.aspx

6 comments:

CynthiaMarch 3, 2011 at 9:00 PM
What a wonderful example and witness you all are. God is Glorified through your lives... we couldn't be any more prouder! Much Love, Grandpa and Grandma
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RuthMarch 3, 2011 at 9:29 PM
Dear Becky and KC, The journalist did a wonderful job of putting together the heart-warming story of the adventures of Noah Jackson and his family. I loved her reference to the "little light" shining in Noah that Dr. Gerardi first saw in Noah's mommy. You're loving, caring, efficient approach to parenting is truly amazing; we are all grateful to be able to participate as cheerleaders from the sidelines.
The entire Smith/Jackson clan is praise-worthy in so many ways! Shine on!
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Sue in AZMarch 3, 2011 at 11:00 PM
Hi to the wonderful Jackson/Smith Family! You all are a credit to a wonderful faith and a warm love of family!

What an adventure you have had and will have with that little one, Noah. What tremendous progress he has made with your help and love.

Thanks for taking us along on your journey and giving us the priviledge of praying for Noah and you.

What a wonderful article Children's did on Noah's journey! You must be so thrilled with it. You are ALL special; hugs!
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The KapicsMarch 4, 2011 at 3:13 PM
What a wonderful article and a true representation of the faith, grace and strength you both have!
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ANewKindOfPerfectMarch 4, 2011 at 10:03 PM
Wow, what an amazing story!! I am happy to "know" you and your handsome Noah!
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AprilMarch 7, 2011 at 6:36 AM
What a wonderful story!!!
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.