Blink of an Eye: Happy St. Patrick's Day!

Thursday, March 17, 2011

Happy St. Patrick's Day!

I made a lucky shamrock shirt for Bubs again this year. It's truly amazing how much Mr. Man has grown in one short year.

Noah is thanking me for his awesome shirt. HUGS for the MAMA!

No St. Patrick's Day celebration is complete without a few potatoes.

Or are they spuds?

And perhaps a bit of Guinness...for Daddy-O, of course.

One laid back dude ready to celebrate!

6 comments:

Katie JaneMarch 17, 2011 at 9:06 AM
So cute. Love the photo shoot!
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MelissaMarch 17, 2011 at 2:54 PM
Love the Guiness...Uncle Adam will be so proud!! :) Adorbs...love the shirt. You are sooo creative and talented...xoxo
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Vanessa SmithMarch 17, 2011 at 5:35 PM
Darling! Lovin the laid back pose!
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CynthiaMarch 17, 2011 at 7:05 PM
You look so hansom Noah! Happy St Patrick's Day from two Jacksons to three!
Love, Grandma (:D and Grandpa ":0)
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DebbieMarch 17, 2011 at 9:51 PM
Happy St. Patrick's Day! The pics are great :-) I definitely need to try stenciling myself!
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KatyMarch 18, 2011 at 5:33 AM
What great pictures and what a gorgous little boy you have!

Back at the end of January at my 20 week scan I was told that my baby wouldn't survive due to a random, sporadic syndrome called congenital high airway obstruction syndrome or CHAOS affecting the larynx. Then, two days ago, at our post mortem results meeting we were told that our little girl also had webbed fingers and that they were pretty sure she had Fraser syndrome but even the fetal medicine consultant admitted that he knew nothing about it. We're now waiting for our appointment with a genetic councellor which is unlikely to be for another two months. It seems like an awfully long time to wait for answers so of course in the meantime I've trawling the internet and your blog has been a ray of hope. Thank you.

Katy
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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.