Dear Baby Noah, Guess it's OK to call you baby; you're still a little fellow :-} You can't begin to know how many people have come to love you and care very much about how you are doing each day, thanks to the careful, loving documentation done by your terrific mommy and daddy. You're the "heart of their hearts" and we're so glad they happily share you with us!
Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.
WE LOVE YOU TOO NOAH! HAPPY HAPPY VALENTINES DAY!
ReplyDeleteLove, Grandpa and Grandma
Too cute! You are easy to adore and love, sweet Noah...Happy, happy Valentine's Day!!
ReplyDeleteRight back at ya Bubbs!
ReplyDeleteDear Baby Noah,
ReplyDeleteGuess it's OK to call you baby; you're still a little fellow :-} You can't begin to know how many people have come to love you and care very much about how you are doing each day, thanks to the careful, loving documentation done by your terrific mommy and daddy. You're the "heart of their hearts" and we're so glad they happily share you with us!