This past week has been a pretty busy one filled with doctors appointments and procedures. We've received some fairly good news as well as extremely disappointing news. Last Monday, Noah saw Dr. Hodge who checked his G-Tube as well as his bottom. Fortunately, everything is looking great. We see the doctor again in two weeks and if all is well, he'll schedule the reversal of Noah's colostomy. I look forward to not having bags that leak and come off on a regular basis, but I'm afraid that will be replaced with poopie diapers.
On Thursday, we saw Dr. Kaji, Noah's urologist. She told us that Noah's kidneys look even better than when he was first born. Noah has strictures in his urethra, so rather than having a straight tube, it looks like several sausage links. Dr. Kaji assures us this can be corrected surgically and we anticipate that to happen some time in November.
Today, Noah and I headed back to Children's Hospital for a trachioscopy. Noah was not very excited to be back at the hospital.


Dr. Dunham used a scope to look at Noah's trachea. Unfortunately, it has gotten significantly worse than when he was born. Noah's trachea has completely fused shut. Dr. Dunham looked at it from the top through his mouth as well as from the bottom through his trach hole. Noah will need extensive reconstructive surgery in about a year to open up his trachea and allow him to breathe naturally. Along with the fusing of his trachea, Noah's vocal cords have fused together. Dr. Dunham does not think Noah will be able to vocalize once the trach comes out. While we are devistated by the news, we are always looking for the joy and humor in every situation. God has placed us on this path and the amazing people we have met along the way have greatly touched our lives. We're excited to see what God has in store for The Jackson family as we all learn sign language.